Just wanted to keep this blog up to date - since we've been home we've realized just how many people have been reading this blog!
Gabe was released from the hospital last Friday. We were VERY happy to have him home and he's VERY happy to be home.
He still doesn't have his voice back and we don't have a good idea of when it'll be back - guess we'll have to talk to the docs about that some more. We laugh because people are saying enjoy this while you can! I will say that you can communicate an awful lot with a kid without words - it's easy to see how happy he is to be out of that hospital. When he talks, it's a whisper.
He's on a decreasing schedule of steroid to reduce the swelling in his throat and allow his own body to take over that job naturally. We hope and pray that it does. So far so good. His breathing each night is getting better and better. Either Nan or I sleep with him to make sure he's alright.
He's not moving around that much - slow to get up and walk but he will from time to time. He's happy to have you pick him up and take him upstairs to bed. Nap time yesterday was a bit of a battle - so I think we've got an improving kid on our hands - just have to make sure he rests, drinks and eats.
Don't think we'll be back in school soon - one day at a time - I'm hoping he can go back in some capacity next week - but don't want to jinx myself.
Nan and I still want to extend our thanks for all the continued thoughts and prayers, meals, toys, cards and notes. And thanks to our parents and my sister who've both been a huge part of helping us through this.
Pete
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Hi Pete.....
ReplyDeleteWhen my daughter was ready to think about returning to school, she went for just as long as she could handle it, physically, emotionally, or mentally. In the beginning, she went for only 5 minutes a day and then increased it. I sat in the parkinglot with a book and a pager (no cell phones back then) and waited to be paged to pick her up. If you need help with addressing a reentry to school plan with the school, I can help you with that and have done student advocacy in the past. My background in CA is special education and District Mediator. He can also get a home school teacher if he won't be returning too soon, or you guys can get his assignments and do them with him at home, so he doens't fall too far behind. Don't tell anyone, but for a wile, I did the majority of my daughter's 7th grade work....she was too smart and social to be held back for missing class and work, So "we did it" together! There are ways to wrok around the school's concerns. Hopefully, they will be more than willing to meet his educational needs and be flexible with his programing, as he grows stronger.I amso glad he is at home....Yea! Hgus to all of you! Janet
Hey Gabe-
ReplyDeleteHow are you doing at home? Are you still eating popsicles? What are you going to do for Easter? Do havae fun plans? My kids are all home from work or college, so we will all be together for an Easter egg hunt. Tell me what you are going to do for Easter! From, Janet